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YOU MUST consult your own medical Keto Team before making ANY changes to your childs treatment, Matthews Friends cannot be held responsible if you do not heed this warning.

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Heather  : (Today, 09:43 AM) Ang why not phone the MF helpline - if Liam is having more sz because his ketones have dropped then surely that means the diet IS working? Who is his neuro?
kate  : (Yesterday, 11:20 PM) that's a real shame ang, wonder why they have decided to wean rather than tweak the diet to see if they can get control back. seems a shame when the diet was working before.
mollypooly  : (Yesterday, 10:16 PM) :( saw liams nero team today start weaning off the diet tomorow :( nero doc doesnt think its working :(
Paula  : (Yesterday, 09:20 AM) Like kate says try adding some fat in while you wait for the team to review everything?..Increase in cals and boost the ketones again?
Paula  : (Yesterday, 09:19 AM) maybe he is needing a calorie increase. Weight loss should not happen if the diet is adequate in calories. We think that if weight loss happens then blood sugar can increase and this can kill the ketones. Also if he is seizing then you willloose ketones too. Hope you get him sorted soon xxx
mollypooly  : (09 March 2010 - 10:14 PM) things were going great saturday he had 3 big 1s seeing nero 1st thing to see what can be done. hes got no ketones and lost some wait.
Paula  : (09 March 2010 - 08:18 PM) Ang how are the ketones?
kate  : (09 March 2010 - 07:56 PM) that's a shame ang, anything changed? have you tried adding some more fat and see if it helps?
greencat  : (09 March 2010 - 07:41 PM) Ang things were going well?! :(
mollypooly  : (09 March 2010 - 06:21 PM) things not going well this end liams fits seem to be getting worse rather than better
Paula  : (09 March 2010 - 09:22 AM) Thanks Val :)
greencat  : (08 March 2010 - 10:58 PM) Paula I need to contact Lisa tomorrow, I will ask her to PM you! xxxx
Paula  : (08 March 2010 - 10:42 PM) Emma need to talk to Mfs E nurse pls..can i call her?
Paula  : (08 March 2010 - 10:41 PM) Goodluck with the drug CA xx
Paula  : (08 March 2010 - 10:30 PM) tata for now..hugssxxx
Paula  : (08 March 2010 - 10:30 PM) Oh that sounds good H !! Hope is all goes wellfor Cx
Heather  : (08 March 2010 - 10:30 PM) must go check my online bank P, owe my sis some money! Lots of love and hugs to you and yours xx
Paula  : (08 March 2010 - 10:30 PM) !! i MEAN
Paula  : (08 March 2010 - 10:29 PM) hehehe..you have a lovely paed 11
Heather  : (08 March 2010 - 10:29 PM) took me ages P befor I could say the words!! Even got his paed enquiring if he was still hrmph! Still feel like am tempting fate!
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Another Success On The Diet...this Is Why We Do What We Do.

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Blog: Emma Williams' Blog
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Just had to share this e-mail that I received in this morning...

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